A man in a wheelchair takes part in a protest against cuts to state disability welfare payments in London, Britain, March 23, 2016. REUTERS/Dylan Martinez
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CAIRO – 12 July 2021: A second Egyptian child with spinal muscular dystrophy was injected with a 34 million pound drug as per presidential directives to treat children suffering from the disease at the state’s expenses.
Asser Karim el-Din, on year and ten months years old, undergone an injection operation to his spine at Ain Shams Specialist Hospital.
Doctors of Ain Shams Hospital, under the supervision of Dr. Nagia Ali Fahmy, Director of the Musculoskeletal Diseases Unit at Ain Shams Medicine, treated and injected the child with the drug “Zolgensma”, which is the most expensive drug in the world, with a value of 2.125 million dollars, equivalent to 34 million Egyptian pounds.
Dr. Mahmoud El-Matini explained that this drug is the first gene therapy of its kind in the world that is given to the patient by intravenous injection for one time only, and it was approved by the US Food and Drug Administration in May 2019.
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